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Citizens' Panel

                                            Why form a Citizens' Panel?

It is common to have groups of patients and members of the public involved in research studies as advisory groups. The Response Study does not focus on a group of patients with a particular illness, or patients who use specific health services or on any other identifiable groups. It will be looking right across the NHS at the roll out of a policy that will affect all the services that it provides. Because of this, the best method of involvement will be from the perspective of citizenship.

The Citizens’ Panel will act as the public’s eyes, ears and voice; acting as a group of ‘critical friends’ to the study. It will:

  • Ensure public accountability for, and scrutiny of the focus and conduct of the research;
  • Support wider discussions about the emergent findings of the research and what they mean for fairness, equality, equity, diversity and inclusion;
  • Support the dissemination of findings in creative and accessible ways.

The Citizens’ Panel will meet regularly throughout the project. We advertised the opportunity to join the Citizens’ Panel in early 2023, and we have convened a panel of sixteen people.

Angela King

The Citizens’ Panel is chaired by Angela King, who is independent of the research team. A skilled chair and facilitator and an active patient advocate for over 25 years, Angela has personal experience of long-term illnesses and end of life caring. She has undertaken many roles in the voluntary sector, including Trustee and Chief Executive, and is currently involved in advocacy work in academic institutions and researcher funders.

 

 

 

James Titcombe

James Titcombe is a Co-Investigator on the Response Study and our Patient and Public Involvement & Engagement Advisor. James works closely with Angela, the Citizens’ Panel and the research team. James has campaigned for patient safety since 2008, when his son Joshua died shortly after being born. Since then, James’ career changed from working in the nuclear industry to a career in patient safety–championing improvements in culture and learning.